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Renee - I'm glad to see Dr. M has been of help.. I knew the Tampa visit would help also.
Terry - There was a recent posting on here about PNH. Based on our talk, you don't show the classic symptoms, but you lose blood so quickly, you might have them test you, if they haven't already.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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