Thread: Day +45!!!!
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Old Sat Jan 23, 2016, 05:04 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi Kamara - you are doing exceedingly well - it is very early to expect normal counts - I'm at day 125+ and am still not normal in platelets and RBC - Day 100 is more of a marker and even then all your counts may not be normal. Relax and take care of yourself - a good time to learn patience. Hopefully you'll continue to sail through - but don't be surprised if there are setbacks along the way.

You need to be especially careful about avoiding infections - especially with young children - lovable and cute disease vectors - My doctor describes the transplanted immune system as that of a premature infant. Listen to the instructions about wearing mask and gloves, hand washing, avoiding crowds etc. Take time to heal!

Best wishes for a continued, boring recovery.

Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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