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Connie
Hi Connie,
Sorry I didn't get back with you..I went to the NIH, and according to their criteria, I have mild and don't need treatment right now. The only way I can help myself is to decrease stress and to try to be healthier. So, organic foods, working less, working out 20 minutes everyday, avoiding negativity, ect...I hope you are doing okay with your treatments, hang in there!! Linda
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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