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Dear Ray,
I have been thinking about you.
I was talking to my uncles, they were war veterans too. My Dad and some uncles have passed away, there are only 2 uncles left, I talked about blood diseases and they talked about Agent Orange and their own illnesses. I told them your story, and it gave them and their families a lot of hope, you know, following your story.
Let me know how your prednisone taper goes down. I am on prednisone 5mgs daily, with cyclosporine 25mgs every other day. Wish it could be tapered.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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