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Hi Audrey,
You are such a brave and caring person! I'm sure you mom appreciates your support during this trying time.
You are wise to seek another opinion at U of WA or the Mayo. They would be a good resource for recommending alternative treatments, since cyclosporine alone does not appear to be doing the trick (and is hard on the kidneys).
Wishing you and your mom the best! Be strong!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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