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I was diagnosed with AA in April 2011. Did ATG in Sept. 2011. Have not had a blood transfusion since Dec. 2011. Took 600 MG Cyclosporom for close to 9 months. Did taper in next 3 months and have not had any since Sept. 2012. Have still not had any blood transfusions since then ( 5 months.) Counts have been stable. Still far below normal,,,HCT 39, WBC 3.0,plateletts 58 but still no transfusions. My Dr. believes at some point the Rx is not keeping numbers "normal", that the treatment (ATG) is working and is not necessary to keep up the cyclosporum. This is hard for patients to accept. For me it has been true. If it comes back I think that I would have to think about 2nd round of ATG instead of going back on cyclosporum. Call me if you want. 860-651-9791. I also see Dr every 3 months now, but choose to have blood tests at lab every 6 weeks if I feel like it. I have a standing blood test form on file at lab.
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