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Taper
There is a lot of food for thought in these posts. I had ATG in March 2012 and last transfusion in April 2012. Counts have held low but steady - last month WBC 3.6, HGB 9.0 and PLT 34,000. I am ready to start tapering tacrolimus at the one year mark which is coming up soon - by coincidence next doctor appointment is one year to the day since my last Tx. Please note that my dr. feels otherwise and has indicated he wants me on full dose indefinitely (or I should clarify - until counts are at normal levels). I do think that the meds are holding back my body's ability to grow new blood cells.
Susan F. - I like you only see the dr. every 3 months with labs in between at the 6 week point if needed. I too feel that is plenty.
Dena - we emailed in the past. Best of luck to you - I am looking forward to reading your story when you are up to it!
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Melanie, age 52. Dx AA 11/11, ATG 3/12, partial response, still on tacrolimus
Last edited by MelanieW : Sun Feb 10, 2013 at 12:54 PM.
Reason: spelling error
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