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Hi, dkimmel.
This must be a very difficult situation for you. After having had a good response for so many years, I understand that you are facing the return of the monster that lurks in the back of our minds as survivors. Your post, though difficult to share, was an important contribution to this forum as it shows the need for vigilance about our health even when the disease seems to have been eradicated.
What treatments are being suggested for your PNH?
Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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