Quote:
Originally Posted by Chirley
Hi sbk007,
The prognosis of 15 months is if you have NO treatment. These days there are treatments which alter the life expectancy considerably.
You need to ask the haematologist what phase your trial is in. Personally, if there were other options (such as Dacogen, Vidaza or transplant) I would not enter a phase one or two trial.
Chirley
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The hematologist/oncologist that did the bone marrow biopsy and diagnosis, and prognosis told me there were no treatmments that he knew of other than supportive care. This is why he reffered me to Cornell/Weil.
I m w u why the trial if theres dacogen and vidaza. These r questions for him. What I m finding is there arent a lot patients in my age group with this disease so the Docs dont see it much so not a lot of info. Its all overwhelming so take it day by day and ask questions.