Hi Shellybean,
These blood diseases can be very hard to diagnose. My husband's CBC was normal in March, 2008. We found out at the end of Nov., 2008 that something was wrong - but the bone marrow biopsy was inconclusive. Usually AA comes on fast like his symptoms did - and MDS is usually a slower process - which also led to the confusion. He started needing transfusions in Jan., 2009 (blood/platelets) but was not diagnosed with MDS until April at the National Institutes of Health in Bethesda,Md. It was then a year and a half before his marrow presented itself with definitive MDS. Sometimes MDS, AA, and PNH can overlap which also causes problems with diagnosis.
I wish you well!
Sally
Last edited by Sally C : Mon Dec 19, 2016 at 07:21 PM.
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