Quote:
Originally Posted by JoaquinM
Hi Susan,
I have been living with 24,000 / 29,000 plaquetes for 15 years now (horse ATG was almost 30 years ago). Since I'm new at the forum, I will be opening a separate thread to tell my story, it might be useful for others...I had the ATG being 11 years old, now I'm 40. Not taking any medication for the last 15 years, other than folic acid, 5mg a day.
My full blood count is not spectacular of course, but I have a normal life 
Kind regards,
Joaquin |
I am VERY interested in hearing your story. Please give me the thread to your story!!!!! Just message me. =-) I am a firm believer also that you should not go to such drastic measures (ATG, Cyclo, Stroids) unless your levels are so continually low, that you are at risk of death. As long as you are transfusion independent IS the most important thing. Then you can work on it from there with diet, supplements, or herbs,,,ect. I am wondering how do you get your teeth cleaned with platelet levels that low? That is the only thing I am scared of doing right now. I haven't had my teeth cleaned for almost 2 years because of AA. =-( But my platelets are a little lower than yours. I won't get a platelet transfusion now until my platelets drop below 10. Before I was getting transfusions when my platelets were in their 20's at the doctors pressuring. I have now realized you REALLY do not need a platelet transfusion in your 20's. But I wish to be in my 20's again like you.