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Old Wed Oct 17, 2012, 03:13 PM
Bambam Bambam is offline
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Join Date: Oct 2012
Location: Vancouver, BC, Canada
Posts: 59
What does normal Chromosomes mean?

I just learned "good news" in that my chromosomes are normal. However, all I could summize from a short telephone conversation is that this bodes well for long term prognosis. After I had put the phone down, I wondered what exactly that means? Will I live longer? Healthier? Does it mean I am at low risk of developing AML? My Hematologist has now referred me to the MDS Specialist at our large teaching hospital (the same unit she works at) as she wants a second opinion. It seems that while a BMB confirmed MDS, my symptoms don't fit the diagnosis. My white cells are within range and until now my platelets were normal. Now they have risen to 429. I'm new to all this and in some ways anxious to know more and in others, frightened to know more. Your thoughts are always welcomed and if you live in Vancouver, perhaps we could meet for coffee.
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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