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Old Mon Oct 29, 2012, 07:25 PM
Karenish Karenish is offline
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Join Date: Feb 2011
Location: Stafford, United Kingdom
Posts: 100
Firstly you are not alone, there are thousands of us, who have been through and come out the other end. It is a life threatening disease but it is not classed as a terminal disease. Most of the articles you find on the internet are out of date, and way back in the 70s then you probably did only have about 3 years to live, but this is 2012 and new treatments are coming online regularly. My guess is that they will monitor you and if need be you will be given ATG which is horse serum. There are lots of postings of what to expect, but remember everyone is different. For my experience it has been relatively ok, I wouldn't say its been easy as that would be flippant, but doable! After 10 months my counts began to climb and they continue to climb slowly but steadily. There are many on here who have gone into long term remission, one person 27 years and counting! So don't dwell too much on the internet. If you have facebook, look for Aplastic Anaemia your fight is my fight. You will read lots of positive stories, some don't have happy endings but this is life. Your neighbour may be the picture of health, but go out and be involved in a car accident, does it stop them going out? Be informed but dont overload - give yourself a day to be miserable and then decide that the next few days are going to be good days.
Take each day as it comes and embrace this new journey, we will all be here holding your hand towards recovery. xx
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