Hi camiboxer,
Your father seems to have managed very well since dx 2006
. Perhaps they should control his HGB, WBC and platelets more often than 3 or 4 times a year.
You have to follow these counts and if the HGB is too low he could try Aranesp or another EPO drug that increases the HGB in many patients. It is important to know how high your father's EPO is. Our kidneys make EPO and if it is high (more than 500) more EPO from injections won't help us.
If Aranesp doesn't work some patients will respond if they combine Aranesp with Neupogen or a similar drug for WBC.
Hope your father will get treatment for the low HGB and that he will respond!
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006. Positive results with Thalidomide + Prednisone.