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Uinversity of Florida - Gainesville, FL
Quote:
Originally Posted by rar
While I have gotten good care from the VA my experience with MDS was less than satisfactory. I had MDS RAEB2 and went to the VA for an opinion. The doctor agreed with the MDS and told me the waiting list for transplants is so long that I would be dead before my number comes up. It is strange that no mention of this visit showed up on my record at my healthy vet. I hope you get better care.
Ray
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Ray,
I am sorry you didn't have a better experience. I had been seeing a civilian hematologist and after many tests and visits she said "It looks like you have aplastic anemia but you should get a second opinion". I did just that. The VA sent me to the VA Hospital in Gainesville, FL. I did some research and found out some of the doctors at that hospital also work at the University of Florida Hospital - Gainesville (formerly Shands Hospital). I picked one that was board certified in hematology, oncology, and internal medicine and asked to be seen by her. I am totally satisfied with her care.
Hope you do well.
Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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