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Old Fri Sep 18, 2015, 10:50 AM
HopeW HopeW is offline
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Join Date: Aug 2015
Location: florence,sc
Posts: 27
Desperate, please help

Hi, guys.
My doctor here wants me to do BMT evaluation next Wednesday.
But since I both have lupus and MDS with del(7). They think this is the only way to go. But now I am having this fever of almost 101 every morning and then I would sweat and temperature breaks down. My heart rate were like 100 although I just got 2 units of blood. And blood pressure low. I tapered prednisone from 40 to 30 around 10 days ago. And my counts crashed too.

Do I have to do BMT at the hospital once the evaluation is done?
What they kind of tests are they going to do when they do the evaluation?
How do you choose your BMT centers?

I am really scared and exhausted from all those frustration from life.
God bless all that are suffering.
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41yo Female, AA with digestive problem in May 2005, hATG+Cyclosporine no response, 11/2005 SLE diagnosed, Cellcept+pred, digest resolved, but still tx, 5/2008,shingles and IV pred, stop cellcept, tx free until 5/2015, MDS EB1, Marrow blast 9%, Monosomy 7
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