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Old Sun Sep 20, 2015, 03:02 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Good luck with your appointments, and be sure to do all that you can to kick the fevers. A lot of MDS patients experience fevers of unknown origin. All we can do in these cases is treat the symptoms and keep on top of your hygiene and at least as importantly as the hygiene of those around you They can be carriers of so many diseases that their normal systems don't have any issues with, but your system is susceptible to. Even when my WBC look pretty normal, I am pretty insistent that guests only use the guest bathroom, that they don't directly handle food, and that they foam in and foam out -
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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