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Old Sat Sep 29, 2012, 08:22 PM
cdseibold cdseibold is offline
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Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Call from local hematologist

Got a nice call from my local hematologist to update me on Mayo findings.
He summarized that the results confirmed the earlier low risk MDS diagnosis.
I am anxious to read the actual report and Monday will call to confirm that a copy has been sent to me by Mayo or that I can pick up copy from local group here.
I am sure I will have lots more questions. I did ask about the difference of 2% vs 4% blasts in the two bone marrow biopsy results. He explained nicely that it is a sampling problem and does not indicate a difference in results. Makes sense that the critical number is less than 5.
I questioned about the difference in FISH test vs MC that Mayo did. He stated that usually the FISH would be more specific for the 13q deletion than the MC. OK, so why seen on one and not the other? Every answer seems to lead me to more questions.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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