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Hi, just wanting to ask whether your mum is having any active treatment for her mds or just supportive care ( ie just blood transfusions)? I am currently on my 7th cycle of vidaza and since the start my WBC have never been good. Currently my WBC are .9 and my nutrophils are .16! I was told they don't often transfuse white blood cells. Actually the highest my neutrophils have been is .7. I remember when I was first diagnosed all my blood counts scared me but now they seem "a new kind of normal" . What type of mds does your mum have? What is her blast count? It is a very scary disease but remember we are all out here!
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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