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MRI and ceervical spine
Hi Chirley
I have not visited this site for weeks as we have had our long awaited holiday. I am sorry to hear of your latest problems. Just for interest, David was diagnosed with ataxia type 1 in 2004 ( a year after diagnoses). They thought it may have been triggered by a drug he was taking for his PMR. I think it was an old malaria drug. He was treated with diamox which is used for glaucoma and it passed after several months. He had all the tests also.
I hope you can get some satisfaction from your specialists. We always ask for a copy of reports and keep then in a folder so each one can be up to date. Bring on the promised electronic medical management.
David had a Tx at Logan supportive care last week and we were impressed by the care given.
Best wishes
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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