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Hi its been awhile since I've been on!! I do not have AVN but I do have Iron Overload. I am waiting to get the Exjade to start taking that. However I really need a transfusion - red blood level is 7.2 - but I can't have one until I start the Exjade. It was been really frustrating the last few days but I got ahold of a great customer service rep at EPass and he got me all set up.
Still going up to Denver on the 7th to see the Dr about desensitization and then will have that done and then the Horse ATG. So we are just waiting until that happens.
Best wishes and prayers to everyone!!!
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Lee-39 years old-AA,PNH and chromosome 12 disorder-1 rabbit ATG treatment and 1 horse ATG treatment. Getting my bone marrow transplant on November 23, 2010!!!! Counts as of 12-27-10 HGB 12.0, WBC 7.8, platelets 80, Neut# 3.9(12-24-10)!!! Just a touch of GVHD but back home!
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