Is it possible that MDS RAEB-2 is just a chronic illness? I just wonder what it does to the body to have chronically low platelets? I mean obviously they have figured out the normal zones for bloodwork, but I wonder what happens when you are just always low (44-95).
Is it possible that nothing happens and you're totally fine... its just a number? My husband has had those low numbers for 10 years and he seems fine.
At this point I feel like it would take something else to cause him to get sick, but if you don't know what caused him to have low platelets to begin with, how on earth would you ever know what can hurt him at this point?
Obviously, i'm not complaining... I just feel this huge black cloud on the horizon and I just don't know what will cause it to land on us and that bugs me. (control issues much?
) Is it possible there is no huge black cloud?
I think the "why" of the disease bothers me the most. He was a Millwright for almost 30 years... I'm assuming he got it from Benzene (which he hasn't been around since 2008), so maybe the damage is done and nothing bad will happen.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation
