Quote:
Originally Posted by Meri T.
Ray,
Wondering how the talk with your doctor about Ibrutinib went?
Stay warm everyone, Spring is near.
Meri
|
The doctor bad mouthed the Ibrutinib. He said the side effects were bad, it had been tried on only 42 patients, and it is suspect that it got FDA approval on just 42 cases. He said my GVHD was too mild to treat. He said my dizziness, fatigue etc. was old age. Not a satisfying visit.
Our weather is variable. Last week we had a shorts day at 70F and that night it was -8F. Hard to keep warm out doors with below 0 temperature and 45 MPH wind gusts, but 70 in the middle of winter is nice.
Ray