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Hi Leelsay,
I had the burning hands/feet and was really jitterly, but it was from too high a dosage of Cyclosporine. I was extremely sensitive to touching water. Cyclosporine can also cause high blood pressure. What dose did you start on?
Prednisone is miserable! I had a lot of weird side effects that went away weeks after stopping it. I think it causes low blood pressure.
I had intense joint pain intermittently about a month ago that would wake me up at night. Soon after, my counts started to rise. I've heard that it is a common symptom in pediatric leukemia patients as cells fill the marrow. I hope that is your case and not AVN!
Best of luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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