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Hi Paul
Yes he is 100% Donor. After the 2013 transplant since it was T cell depleted he had no GVHD and was really not on a lot of medicine, after this last one in 2015 he was taking about 50 pills a day the first couple months that slowly got cut down and by the one year mark he was off almost everything except acylavir and heart meds. He had no GVHD until about 3 weeks ago so he is now back on tacrolimus. So far it is not bad at all, a rash and dry eyes. The Dr's are very on top of him so hopefully it will clear up soon. As for skiing last year he was in no shape he was definitely too weak to even attempt it but this year he's already planning and I think he will be able to go, he exercises and works out everyday and as far as getting through it, there really is no choice we just have to keep moving forward.
Where are you being treated? Jimmy goes to Sloan Kettering.
All the best
Margaret
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