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Old Sun Sep 11, 2016, 01:14 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi I tried sending you a private message with some more private questions - not sure if it worked

I'm glad Jimmy is doing well - how have you held up? - any thing I can do to make it easier for my caregiver wife - i think its harder the second time for her - she tries to be strong and I couldn't get through it without her - but she is in a pretty unique situation and I think its difficult for her to find people to really share her experiences, fears and concerns - she mostly tries to put on a strong face to protect me and the kids.

I hope I get to see Jimmy on the slopes! Do you and the kids ski too?

I'm also at MSK.

Thanks again for reaching out.
p
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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