Linda thank you for posting this!
I truly enjoyed meeting you all! It was so nice to meet with people who understood what we are going through. I highly reccomend anyone who is in the Houston area or maybe visiting feb 9th or has a community of hope in their city to give it a try 
I was happy to meet and share experiences, advise, and brainstorm on how to make a difference. These meetings are kind of like a 3D Internet support group in a way .
I look forward to meeting w you all again!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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