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Transplant timing
This is a great place to read about experiences of others both good and bad.
I was diagnosed with MDS in April/07. I have a sibling match and I'm on Eprex right now but it doesn't seem to be very effective. The transplant feels like a freight train that is eventually going to crash though our lives.
I feel like we are in good hands at Princes Margaret Hospital in Toronto where the transplant will take place. My sibling match - my sister works as a nurse at Sunnybrook Hospital also in Toronto. Sunnybrook is a center of excellence for MDS. She recently attended a teleconference lecture done by researches at Cornell who study MDS/AA/PNH. Their opinion is that if there is a match the BMT should not be put off but done right away. I'm looking for resources/opinions/information that I can help us make as good a decision as possible as to when to do the transplant. My doctor right now is saying to put it off as long as possible but should we reconsider this?
Mark
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