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Old Tue Mar 26, 2013, 11:09 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Thx y'all! Great tips! Truly appreciated!
Cheryl interesting about the organic coconut oil! I actually just bought some for my hair and skin lol (winter has dried them out!) Its unopened so we'll give it a try thx for the link!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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