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Old Sat Jun 20, 2015, 12:16 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi TASHMAC,

Glad to hear from you again How was your experience with the second round of Rabbit ATG? Are you seeing any response yet?

Is your PNH clone still less than 1%? If so, I wouldn't be concerned as that is still considered sub-clinical.

My PNH clone has also increased in size. I am still sub-clinical though at .99%

There are two upcoming webinars through AA&MDSIF that you may find interesting and a good place to ask questions. They are on July 7th and 9th. The first is on long term issues for AA and bone marrow failure patients. The second is on the dual diagnosis of AA and PNH. You can sign up for these webinars through this website:

https://www.pathlms.com/aamdsif
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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