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Old Wed Mar 7, 2012, 08:51 AM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
If you look at my tag line you'll see I've been on the watch and wait list for almost six years now.
I get my CBC every 3 months and my numbers ever so slowly creep on a steady downward path, which I guess is a good thing. 1/10th or so here 2/10ths there. Presently my HGB is at 10, HCT at 30, Reds at 3 and platelets at 74, but none of them are critical enough to warrant treatment. The V.A., where I go is controlled by Medicare because of my age, don't want to spend any money any sooner than they have to.
It is very aggrievating at times. I have a very high metabolism and my body can't seem to sustain on these numbers. The daily, constant fatique drives me crazy at times, but I've learned to live with it. I guess it it's better than the alternative.
Hang in there, I do.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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