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Old Tue Apr 18, 2017, 07:56 AM
Sue&Dave Sue&Dave is offline
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Join Date: Nov 2016
Location: New York
Posts: 50
Hi Eileen - my husband had intermittent fevers as a symptom of his progressing MDS. He had countless tests and a short hospital stay to rule out infections before starting him on Vidaza. Interestingly, like your Dad his blasts were minimal (between 3-5%), but the disease itself was wearing him down. He starts round 4 of Vidaza next week and the results thus far have been encouraging. Because he was feeling so poorly when he started the Vidaza the first two rounds weren't promising, with exhaustion and general malaise as his main complaints. About halfway between round 2 & 3 he felt remarkably better and only needed two transfusions early on in his treatment. It appears (hopefully) he may be one of the 'lucky' ones that Vidaza works on. His side effects were minimal as well. No nausea, but a short bout of constipation (as a result of the anti-nausea meds), some fatigue (less with each round) and definitely reddening at the injection sites. He takes stool softeners for the entire week of treatment and about 3 days afterwards. We are considering using a half dose of the Zofran to see if nausea is even an issue.
As you are well aware after researching this disease and reading these boards everyone reacts to the disease and it's treatments differently. How to proceed is a deeply personal decision and I wish the best of luck to you, your dad and the rest of your family.
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