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Thank you Lisa. This was very helpful. No one, including my oncologist, who is on the AA-MDS board, nor Dr Young at the NIH who I saw end November can really say why I developed AA post transplant. My transplant appeared to work incredibly well and I healed relatively quickly from it. Seems to be a mystery to everyone and if neither of them can say why for sure, and no tests to date tell us why, it just seems to be one of those things. I beyond followed all the "rules" post transplant, ate extremely healthy, organic everything, avoided being in public... And get here we are. So horse ATG looks like we're going to have a party.
Best,
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
Last edited by dfantle : Thu Mar 22, 2012 at 06:32 PM.
Reason: Added More info
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