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I am curious. Has your doctor discussed s low dose 10 day regimen? This tends to have fewer side effects snuff in many patients better outcomes with more predictable and manageable troughs. Thus presenting less risk to you as the patient. It is not an approved regimen, but had had success in trials and may be worth the conversation.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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