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Hi Nicole,
They took John off daily GCSF pretty soon after his white count kicked in. He went to 3x week, then 2x week, then 1x week then nothing. And his ANC never got up to 6.4 with it. When you come off of it, you can expect the WBC and ANC to drop 50 -70% which is pretty alarming. In fact, John's WBC/ANC took about 4 months after stopping it before it stabilized at the lower level. Our doc said that you can fight anything with and ANC of .5 and John did just fine for a few years with an ANC range of .8 - 1.1. You can always add it back in if there's a need. We did that when John got the shingles. To this day, John's ANC remains low...1.8 - 2.1 is his new range for now.
So I would agree with you....continue to reduce it if you can.
Take care,
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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