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Those of you who avoided the mouth sores, that is wonderful! Those who didn't, it does NOT mean you did anything wrong. I drank tons of fluids and practiced great hygiene diligently and still ended up with grade 3 mucositis the full length of my digestive tract. Sometimes it just boils down to bad luck. The good news is that no matter how miserable, it will heal and eventually be nothing more than a bad memory.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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