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My sister has Essential Thrombocythemia (ET) with no JAK2 mutation. She has been using medications for 25+ years to keep her platelets down at normal levels without complications. Have you sought out a second opinion to explore treatment options?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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