View Single Post
  #7  
Old Sat Jan 2, 2010, 07:11 PM
leeslay leeslay is offline
Member
 
Join Date: Oct 2009
Location: Colorado Springs, CO
Posts: 38
Birgitta-A,

You have iron overload and are only taking one Exjade tablet a day? I am on 11 tablets a day!!! My Dr office hadn't ever checked my levels after numerous transfusions and when they finally checked it it was skyrocketing. I have to tell them to check my levels for some reason, they just can't remember to check it. So it is really frustrating because what else should they be checking thats not being checked?

Anyway I am going to look into the supplements being talked about sounds interesting. My goal right now is to get off the prednisone!!!!
__________________
Lee-39 years old-AA,PNH and chromosome 12 disorder-1 rabbit ATG treatment and 1 horse ATG treatment. Getting my bone marrow transplant on November 23, 2010!!!! Counts as of 12-27-10 HGB 12.0, WBC 7.8, platelets 80, Neut# 3.9(12-24-10)!!! Just a touch of GVHD but back home!
Reply With Quote