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Hi,
I was told that a lot of people don't respond to Vidaza for 6 to 9 cycles. I'm about to start my 5th cycle and no response yet.
The decisions you have to make about treatment options are difficult and all you can do is listen to each option and make your choice based on what feels right to you. I find the decision making one of the hardest parts of this disease.
Good luck.
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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