My husband has hypocellular MDS with refractory platelets and red cells. He received Campath at NIH in April 2009. He has just started in a brand new clinical trial for Promacta
for low to Int. 2 risk MDS patients. They have had good success with AA patients. It is specifically for platelets but it has also helped with red cells as well. Don is their very first "guinea pig" and they have a second one coming in next Monday. They are very anxious to get additional MDS patients for the study. Here is the contact info for the clinical trial. NIH is absolutely wonderful!!! Extremely accessible!
Barbara Weinstein RN BSN CCRP
NHLBI/ Research Nurse Specialist
Building 10 CRC Room 5130
10 Center Drive
Bethesda, MD 20892