Dr Jason Gotlib at Stanford is excellent. He does AA and MDS and is very knowledgable and dedicated. He saved my life.
Interestingly...I also tried contacting UCSF in the beginning of my diagnosis and never had my phone call returned! I contacted Stanford and had an appointment for later that week.
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.