Well I am still here.
I have now had a DLI and three rounds to Azacitidine. The leukaemic cells are much reduced, but my blood counts are not recovering.
My platelets got up to 70 but have dropped back to 18, so I am going to need more blood and platelet transfusions.
I seem to have skin GVHD now, probably as a result of the DLI. It is very itchy, but on balance it is probably a good thing, as long as it doesn't get out of control.
Thanks for the good wishes.
I will keep you posted.
David, Age 60, diagnosed with MDS August 2018. Low Hb and platelets, weekly transfusions. No genetic mutations. Developed into AML with FLT3 mutation while waiting for a SCT. Allogenic SCT - MUD in Feb 2019. Relapsed June 2019. Azacitidine, Venetoclax and DLI.