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Odd that you should post now just when I have had changes. My platelets dropped below normal in the past two months so we stopped the hydroxyurea. They are continuing to drop off the drug. Still at 130 but I’m not happy. If this continues a bone marrow biopsy is the next step. Possibly the diagnosis has changed. We’ll see over the next few months.
Very glad to hear that you are stable. Remember, I am 13 years post diagnosis so there can be a long time without changes. I’ll let you know what happens with me.
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Vicki - Age 68, dx CMML in 2006. Watch and wait for a few years, now on low dose hydroxyurea to control rising platelets.
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