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Hi there,
So sorry to hear about your baby girl. 20 days post transplant is VERY early to discharge a patient, nevermind a three year old.
The yellow eyes and skin and the vomiting of what sounds like bile, very much indicates liver dysfunction and could possibly be GVH of the liver, for which steroids and other immune suppressing medications would need to be started.
Because this is quite likely a post transplant complication, it seems to me that you should be able to have your daughter transferred immediately to her transplant hospital. What does this current hospital's doctors know about managing graft versus host disease? Not too much likely.
Do everything you can to have her transferred.
Have the nurses told you what her liver enzymes and bilirubin level are? What medications was your daughter sent home on?
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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