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Old Mon Aug 23, 2010, 03:02 AM
paulo paulo is offline
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Join Date: Aug 2010
Location: Los Angeles, CA, USA
Posts: 3
Immunosupressive therapy side effects - HELP

Hi all. My 4 y.o son started ATG on 8/3 for SAA. The ATG had solu-medrol steroid mixed in. After 4 days of the ATG, he started the prednisone. And the cyclosporin was started too. He had his first cyclosporin check on 8/16. It was 660. They skipped a couple of dosages and lowered his dosage by 20%.

Since day three of the ATG, he has been experiencing severe, randomly occuring headaches. The only way to stop them has been with morphine. We're still in the hospital. They've done CT scans, MRI and spinal tap to see if there's any other reason for the severity of these headaches. None of the tests showed anything remarkable. We've seen every hemotologist in this particular group and they all still think this is just a lingering effect from the ATG.

They did suddenly stop the prednisone however on 8/21...cold turkey-- no tapering off.

Does anyone have experience with this severe headache "side effect" lasting this long into the therapy?
Could it be the prednisone and it just has to work its way out of his system?
Could it be the high cyclospirine levels?
Could it be the lingering affects from the ATG that the hemotologists claim?

Our poor little guy is suffering and we'd like to bring him home.

Thanks and God bless.
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