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Old Tue Apr 10, 2018, 01:05 PM
Leigh Clark Leigh Clark is offline
AAMDSIF Patient Educator
 
Join Date: Jun 2007
Posts: 22
HI John K- if you would like to talk with other PNH patients who have been using Soliris for years, contact AAMMDSIF and they can get you connected, 800-747-2820 x140 or email help@aamds.org. Best wishes to you.
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