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+167 post BMT
It has been some time since I posted here.
I used to peruse the site often looking for information on what Ethan might be feeling that he might not be able to verbalize as he is so young. I was following Vera's post pretty closely, and stopped reading when I heard. Guess I just needed some time.
Ethan is doing pretty well. We got through well with very mild GVH - almost nothing. The 6th of April, he starting having pretty frequent diarrhea. We are dealing with that now. Just had a flexible sigmoidiscopy(?) last Wednesday.
Added prednisone and most recently Budesonide to his regime. We haven't been on much so that doesn't seem so bad. Hopefully it is manageable and mild gvh
Nicole, if you read this - hope you and Evan are well!
J
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Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match
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