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Old Sat Aug 13, 2011, 02:36 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Yes, Greg, we have a Medicare Advantage plan and I have had to fight with them every step of the way, even for treatment here in Georgia. When they refused his treatment at M D Anderson, I filed a Complaint against them for delay, and miraculously two days later, they agreed to let us go to M D Anderson. However, M D Anderson (because they have had so many problems with getting paid from this particular company) made them sign a letter of agreement. And I didn't know until we got to M D Anderson that they only agreed to pay 75%. The business office said all the other Medicare Advantage insurance companies pay 90%. You can rest assured that come new enrollment for 2012, we will go with straight Medicare and get a supplement. I never want to be in a position again where an insurance company tells me I can not get the care my husband needs. The disease is heartbreaking enough, but when you have to fight the insurance company too, it becomes overwhelming.
And as you know, the pharmaceutical company pays for the actual drug, but not the labs, bone marrows, etc. which are very expensive.
I'll keep you posted.
Linda
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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