JenW,
You'll find PNH patients here, at the
PNH Support Group website, and through the
Peer Support Network of the
Aplastic Anemia & MDS International Foundation.
Are you newly diagnosed? Have you read about the
basics of the disease and ordered the free
PNH education packet? Alexion Pharmaceuticals runs the
PNHSource website, with additional information.
Have you found a doctor with PNH experience?