[marc]

Hi all,
I did a quick search and didn't find any info for what I was looking for so I thought I would post a question. Has anyone found any holistic or natural remedies to boost red cell production in patients with AA?

I have PNH and AA with a small sprinkling of MDS as well. THe PNH and MDS are under control, as much as either of those two can be. But the AA is giving me issues. I normally transfused when my counts hit below 8 and the counts would then climb to about 10.5. I usually transfused every three to four weeks.

Lately though, my counts are only climbing to about 9.5 and lasting two weeks. I have literally tried every prescription/infusion/treatment available except a second round of ATG. My hemo doc and I are considering a second round with the rabbit (ATL) in the next month or two. We've done the procrits, vidazas, ananesps (sp), steroids, etc, etc and so on. At this point my options are very limited and a BMT is not on the table at this time due to issues I don't want to go into right now.

I have been to the NIH, Cleveland Clinic, NYU Med Center, Fred Hutch, Loyola and Chicago Hospitals in Illinois as well as Rush University. Since they haven't come up with a new viable option I thought I would see if maybe there was a natural/holistic therapy people have tried and had success with.

Please let me know if anyone has any info, I would greatly appreciate it. I hope everyone else is well and I look forward to your help.

Regards,
Marc